Getting patients well, keeping them well, and focusing on a cure
Welcome
Do I Have CGD?
After Being Diagnosed
General Information about CGD
Support for Parents/Patients
Wish Foundations
Kids/Teens/Young Adults
Doctor Visits & Hospitalizations
Specific Infecting Organisms
Drug Therapies
Specific Disease Help
Your Time in the Hospital
Financial Help
Sibling Support
Updates on CGD Patients (2011)
Updates on CGD Patients (2013)
Bereavement
Professional PID Links
Awarded Grants
Clinical Trials
Fundraising
Links
Contact & Nonprofit Info
Contact & Nonprofit Information
Contact information:
Chronic Granulomatous Disease Association, Inc.
c/o Alan Hurley
2616 Monterey Rd.
San Marino, CA 91108-1646
(626) 441-4118
alan-hurley@socal.rr.com
www.cgdassociation.org
The Chronic Granulomatous Disease Association, Inc. is an IRC 501C(3) nonprofit corporation, and all donations are tax deductible. 100% of your donations go toward CGD research. We receive no salaries or pay any rent. All services without charge. Your donations are greatly appreciated!
Time to Update the CGD Association's Questionnaire
If you or your child has been definitely diagnosed with CGD and have previously filled out the CGD Association's Questionnaire, we would greatly appreciate it if you would update your information & dates of illnesses, infecting organism, type and site of infection. Please, if there has been a death, let us know. We care.
If you or your child has been definitely diagnosed with CGD and have not filled out the CGD Association's Questionnaire, we would greatly appreciate if you could fill one out. Please request one and we'll put it in the mail. The questionnaires are a tremendous help in linking patients with similar illnesses or infecting organisms or in the same geographical proximity. If you have been corresponding with other CGD families, you must agree that there are many super, caring families out there - the absolute best!
Currently there are over 1000 CGD patients from around the world on our database, so it is essential to keep tract of where you are and especially how you are doing.