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Welcome
Do I Have CGD?
After Being Diagnosed
General Information about CGD
Support for Parents/Patients
Wish Foundations
Kids/Teens/Young Adults
Doctor Visits & Hospitalizations
Specific Infecting Organisms
Drug Therapies
Specific Disease Help
Your Time in the Hospital
Financial Help
Sibling Support
Updates on CGD Patients (2011)
Updates on CGD Patients (2013)
Bereavement
Professional PID Links
Awarded Grants
Clinical Trials
Fundraising
Links
Contact & Nonprofit Info
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Support for Parents and Patients
CGD - Support Groups/Websites
CGD Facebook Groups
Primary Immunodeficiencies - Patient Support Groups
- Argentina - Asociación de Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)
- Australia - Immune Deficiencies Foundation Australia (IDFA)
- Austria - Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)
- Belarus - Belarus Primary Immunodeficiency, E-mail: save_immunity@tut.by
- Belgium - Belgian Organisation for Patients with Primary Immunodeficiencies (BOPPI)
- Bosnia & Herzegovina - Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID), E-mail: dzenita.subasic@sos-ds.ba
- Brazil - Assossiação Brasileira de Imunodeficiência (ABRI)
- Bulgaria - Association of People with Congenital Immunodeficiency, E-mail: stoil_lazarov@abv.bg
- Canada - Canadian Immunodeficiencies Patient Organization (CIPO)
- Chile - (Associate NMO) Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias (Vida por La Vida), E-mail: vidaporlavida@gmail.com
- Colombia - Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias (FIP)
- Cyprus - Cyprus Primary Association and Friends, E-mail: maria.g.charalambous@cyta.com.by
- Denmark - Immun Defekt Foreningen (IDF)
- Egypt - The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency, E-mail: shereen.m.reda@gmail.com
- Estonia - Estonian Patient Society for Primary Immunodeficiencies, E-mail: juhanliiva@gmail.com
- Finland - Immunipuutospotilaiden yhdistys r.y.
- France - Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)
- Germany - Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)
- Greece - Association of Greek Friends for Paediatric Immunology - Primary Immunodeficiencies (APMONIA)
- Hungary - HOPI (Hungarian Organization for Patients with Immunodeficiencies), E-mail: hzsu86@gmail.com
- Hong Kong - Primary Immunodeficiency League, E-mail: pilhk@outlook.com
- Iceland - Lind - Icelandic Immune Deficiency Foundation, E-mail: gmb@bhs.is
- India - Indian Patients Society for Primary Immunodeficiency (IPSPI)
- Iran - Iranian Primary Immunodeficiency Association (IPIA), E-mail: rezaei_nima@yahoo.com
- Ireland - Primary Immunodeficiency Association of Ireland (PIAI), E-mail: ipiasecretary@gmail.com
- Italy - Associazione Immunodicienze Primitive (AIP)
- Japan - PID Tsubasa-no-Kai
- Malaysia - Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI), E-mail: adli.ali@ppukm.edu.my
- Mexico - Fundacion Mexicana para Ninas y Ninos con Immunodeficiencias Primarias, A.C. (FUMENIP)
- Morocco - Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
- The Netherlands - Stichting voor AfweerStoornissen (SAS)
- New Zealand - Immunodeficiency Foundation – New Zealand (IDFNZ)
- Norway - Norwegian Immunodeficiency Organisation, E-mail: Evabrox@online.no
- Peru - Asociacion Peruana de Ayuda al Inmunodeficiente Primario (ASPAIP)
- Poland - Association for Patients with Primary Immunodeficiencies "Immunoprotect"
- Portugal - Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)
- Romania - (Associate NMO) Romanian Association for Patients with Primary Immunodeficiencies (ARPID)
- Russia - Association for primary immune deficient patients, E-mail: anton_emelin@hotmail.com
- Serbia - Supporting Persons with Primary ImmunoDeficiencies (POsPID)
- Slovenia - Slovenian Society for immune disorders
- South Africa - Primary Immunodeficiency Network of South Africa (PINSA)
- Spain - Asociation espanola deficits immunitarios primarios (AEDIP)
- Sweden - Primaer Immunbrist Organisationen (PIO)
- Switzerland - Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)
- Thailand - ThaiPOPI, E-mail: mayzped@gmail.com
- Turkey - Immun Yetmezlik Dernegi (IMYED)
- Uganda - UPPID, E-mail: winmuk_nam@yahoo.com
- Ukraine - Rare Immune Diseases (RID), E-mail: imunodefekt@gmail.com
- United Kingdom - UK Primary Immunodeficiency Patient Support
- United Kingdom - Primary Immunodeficiency UK (PID UK)
- United States - Immune Deficiency Foundation (IDF)
- United States - Jeffrey Modell Foundation (JMF)
- Uruguay – Associación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP), Mobile: 598297128398
- Venezuela - Inmunodeficiencias Primarias Asociacion Civil (IDPAC), E-mail: idpvenezuela@gmail.com
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